Living with haemophilia – Haemophilia Foundation NSW

Dom on having Gene Therapy for Haemophilia A

23 June 2026

Dom shares his experience of receiving gene therapy treatment for haemophilia A

Neil on getting older with a bleeding disorder

4 June 2026

Getting older, Haemophilia, Personal stories

Neil shares his experience of living with severe-presenting haemophilia A, and how he continues to live well as he gets older

Life with an extra challenge – Cassie and Noah’s story

27 April 2026

Boys, Haemophilia, Parents & families, Personal stories

Cassie talks about raising a young family with an extra challenge - her son Noah has haemophilia B

Michelle – Her journey to diagnosis

16 April 2026

Michelle first experienced bleeding symptoms, in the form of really flooding periods, at the age of 19. Nineteen years later - she got a diagnosis

Steve on gene therapy for haemophilia

26 March 2026

Steve shares his experience having gene therapy for severe haemophilia A – and how it has changed his life

Simoni and Javonte – growing up with a rare bleeding disorder

26 February 2026

Simoni and Javonte chat about growing up with VWD type 3 and severe haemophilia

Telling daughters: Zev’s story

26 August 2025

Growing up with a bleeding disorder, Haemophilia, Parents & families, Personal stories

'Make it a family conversation'. Zev shares his advice for talking to daughters about haemophilia

Paul talks about his career

12 June 2024

Paul shares his experience working as an apprentice shipwright and boat builder, a FIFO WHS manager, and today supporting his brother in a business with over 60 employees and a growing client base.

Jason – Growing older with haemophilia

19 July 2023

Jason shares his story of growing up with haemophilia and the very different story he was told as a teenager

Overcoming challenges – Adam’s story

19 July 2023

Adam was diagnosed with severe haemophilia A when he was only one week old, after developing an intracranial bleed at…