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Home  >  Bleeding disorders  >  Living with a Bleeding Disorder  >  Personal Stories  >  Living with haemophilia

Living with haemophilia

Paul shares his experience working as an apprentice shipwright and boat builder, a FIFO WHS manager, and today supporting his brother in a business with over 60 employees and a growing client base.
Jenny shares her story of how she discovered she had acquired haemophilia and how it was able to be successfully treated with the support of her hospital and Haemophilia Treatment Centre.

Advances in haemophilia treatment and care over the last few decades have meant that there has been overall increase in…

Adam was diagnosed with severe haemophilia A when he was only one week old, after developing an intracranial bleed at…

Glen and Jan, parents of two daughters who carry the gene alteration causing haemophilia and have bleeding symptoms, talked to…

Sharron’s father Glenn has haemophilia, so she has always known and lived with haemophilia. When she was a child it…

One of the main reasons women choose to have genetic testing for the altered gene for haemophilia is to find…

Haemophilia treatment has changed over the years. The story of ‘Poppa’ Erl, grandfather, and grandson Roman, shows just how much….

Amanda (Mindi) Palm is an Australian community member and blogger who moved to Sweden for a few years. She explains…

Ben and Kylie have a son, Ryder aged 4 with severe haemophilia A. Being the father of a small boy with…

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