Items tagged 'Haemophilia'

Bleeding Disorders Awareness Month 2026

14 September 2026

October is Bleeding Disorders Awareness Month, and we are celebrating with a stall at Royal Prince Alfred Hospital, alongside the Haemophilia Treatment Centre. Come find us in the hospital foyer, opposite the volunteers desk near the entrance, on Thursday 8 October from 9 to 10am. There will be refreshments, a warm welcome, and a chance to connect with our community and the treatment centre team.

Dawn Rotellini – A voice for women and girls with bleeding disorders

8 September 2026

Advocacy, Haemophilia, Personal stories, Women & girls

Dawn Rotellini shares her experience being diagnosed, and why it is so important to advocate for women and girls with bleeding disorders. She also gives her top three tips for other women and girls advocating for themselves.

Living life on his own terms: Neill’s haemophilia journey

28 July 2026

Neill shares his experience growing up with haemophilia in the 1950s and 60s, changing treatments, building a career, travelling, and living a full life

Dom on having Gene Therapy for Haemophilia A

23 June 2026

Dom shares his experience of receiving gene therapy treatment for haemophilia A

Neil on getting older with a bleeding disorder

4 June 2026

Getting older, Haemophilia, Personal stories

Neil shares his experience of living with severe-presenting haemophilia A, and how he continues to live well as he gets older

Life with an extra challenge – Cassie and Noah’s story

27 April 2026

Boys, Haemophilia, Parents & families, Personal stories

Cassie talks about raising a young family with an extra challenge - her son Noah has haemophilia B

Michelle – Her journey to diagnosis

16 April 2026

Michelle first experienced bleeding symptoms, in the form of really flooding periods, at the age of 19. Nineteen years later - she got a diagnosis

Steve on gene therapy for haemophilia

26 March 2026

Steve shares his experience having gene therapy for severe haemophilia A – and how it has changed his life

Simoni and Javonte – growing up with a rare bleeding disorder

26 February 2026

Simoni and Javonte chat about growing up with VWD type 3 and severe haemophilia

Telling daughters: Zev’s story

26 August 2025

Growing up with a bleeding disorder, Haemophilia, Parents & families, Personal stories

'Make it a family conversation'. Zev shares his advice for talking to daughters about haemophilia