Items tagged 'Women & girls'

Michelle – Her journey to diagnosis

16 April 2026

Michelle first experienced bleeding symptoms, in the form of really flooding periods, at the age of 19. Nineteen years later - she got a diagnosis

VWD: Your voice matters – Sophie’s story

7 April 2026

Family Planning and Pregnancy, Personal stories, Von Willebrand disease, Women & girls

Sophie talks about being diagnosed with VWD in her 20s, pregnancy, and advocating for yourself and others

Women bleed too survey

5 March 2026

What are the experiences of women and girls with bleeding disorders when they speak up for themselves in health care settings? Survey closing 8 April 2026

International Women’s Day 2026

5 March 2026

8 March is International Women's Day. Help us balance the scales - let's raise awareness about bleeding disorders testing and diagnosis for women and girls

Shauna Adams – managing type 3 VWD

19 July 2023

This is a transcript of Shauna’s presentation at the 2019 Australian Conference. Hi everyone, thank you all for joining me today….

Susie – living with type 1 von Willebrand disorder

19 July 2023

I keep learning new things in my journey with a bleeding disorder and I’ve come to the opinion that this…

Haemophilia – when your daughters bleed too

19 July 2023

Glen and Jan, parents of two daughters who carry the gene alteration causing haemophilia and have bleeding symptoms, talked to…

Haemophilia – do you catch it?

19 July 2023

An Australian bleeding disorders community member tells her personal story. I have lived my whole life surrounded by haemophilia. My…

Susie ~ Disclosure and telling others

19 July 2023

Susie is an Australian community member. She has von Willebrand disorder (VWD) type 1 and her child has VWD type…

Sharron – A woman with haemophilia, carrier, mother of a son with haemophilia, dad has haemophilia

19 July 2023

Sharron’s father Glenn has haemophilia, so she has always known and lived with haemophilia. When she was a child it…