News & Stories Shauna Adams – managing type 3 VWD 19 July 2023 Personal stories, Von Willebrand disease, Women & girls Living with VWD This is a transcript of Shauna’s presentation at the 2019 Australian Conference. Hi everyone, thank you all for joining me today…. Read more
News & Stories VWD – all in the family 19 July 2023 Personal stories, Von Willebrand disease Living with VWD “Lyn” (not her real name) is mother to several children with von Willebrand disorder. She was interviewed by Suzanne O’Callaghan,… Read more
News & Stories VWD – Down the generations 19 July 2023 Personal stories, Von Willebrand disease Living with VWD Fiona is in her early 50s and found out she had von Willebrand disease (VWD) when she was 6 years… Read more
News & Stories Living life actively with VWD 19 July 2023 Personal stories, Rare bleeding disorders, Von Willebrand disease Living with VWD, Rare Disease Day Adam is in his late 40s and has Type 3 von Willebrand disease (VWD), which is a severe form. He… Read more
News & Stories Susie – living with type 1 von Willebrand disorder 19 July 2023 Personal stories, Von Willebrand disease, Women & girls Living with VWD, Women I keep learning new things in my journey with a bleeding disorder and I’ve come to the opinion that this… Read more
News & Stories Susie ~ Disclosure and telling others 19 July 2023 Employment, Personal stories, Telling others, Von Willebrand disease, Women & girls Women Susie is an Australian community member. She has von Willebrand disorder (VWD) type 1 and her child has VWD type… Read more
News & Stories Shauna – sharing her life experience living with a bleeding disorder 19 July 2023 Growing up with a bleeding disorder, Personal stories, Von Willebrand disease, Women & girls, Young people Living with VWD, youth Tell us a little about your bleeding disorder I have severe Type 3 von Willebrand disease. Essentially my blood doesn’t… Read more
News & Stories Perry and living with VWD 2 March 2022 Getting older, Personal stories, Von Willebrand disease My name is Perry. I have von Willebrand disease type 2a. I'm in my 70s, and I didn't get diagnosed until I was in my late 50s. I live with the disease and I would like to talk about that. Read more
News & Stories Growing up with von Willebrand disease 14 December 2021 Personal stories, Von Willebrand disease, Women & girls, Young people girls, periods, VWD Simoni tells her personal story of growing up with the challenges of type 3 (severe) VWD. Read more
