Rare Disease Day – Haemophilia Foundation NSW

Rare Disease Day 2026

26 February 2026

Events & awareness, HFA & Foundation news, Rare bleeding disorders
Rare Disease Day

28 February is Rare Disease Day – a worldwide event to raise awareness and generate change for people with rare diseases

Growing up with Glanzmann thrombasthenia

28 February 2024

Personal stories, Rare bleeding disorders
Glanzmann thrombasthenia, Rare Disease Day

Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth spoke with HFA about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.

Living life actively with VWD

19 July 2023

Personal stories, Rare bleeding disorders, Von Willebrand disease
Living with VWD, Rare Disease Day

Adam is in his late 40s and has Type 3 von Willebrand disease (VWD), which is a severe form. He…

Items tagged 'Rare Disease Day'

Rare Disease Day 2026

Growing up with Glanzmann thrombasthenia

Living life actively with VWD

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