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Representing the NSW
bleeding disorders community

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Register for our e-news to stay connected with the New South Wales bleeding disorders community.

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HFA Gene Therapy Snapshot Survey

HFA would like to understand what our community members want from their haemophilia treatments and your perspectives on gene therapy...
Gene therapy: Ask me anything with Dr Michiel Coppens

Gene therapy interview with Dr Michiel Coppens now available

On 14 May 2024 we were fortunate to have Dr Michiel Coppens join us at the HFA office for an...
Dr Michiel Coppens

Have your gene therapy questions answered

Dr Michiel Coppens is coming to Australia and we want your questions for a special 'Ask Me Anything' interview about...

Support Groups

Find local support groups in your area

Info for me...

Getting Older Hub

Youth walking

Youth – Factored In

Women with bleeding disorders

Find information for women and girls with bleeding disorders, including carrying the gene, haemophilia testing, VWD in females, self-advocacy and...
Bleeding Disorders Awareness Month
This October help us raise awareness for haemophilia, von Willebrand disease and other bleeding disorders.
Find out more

Looking for another foundation?

Click on the map to navigate to the site of each state's foundation.

Alternatively, click here to visit Haemophilia Foundation Australia.

Personal stories
Jenny - acquired haemophilia

Acquired haemophilia – Jenny’s story

Jenny shares her story of how she discovered she had acquired haemophilia and how it was able to be successfully...
Claire speaking at the 21st Australian Conference on Haemophilia, VWD and Rare Bleeding Disorders

Hopes for the Future

Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia,...
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Growing up with Glanzmann thrombasthenia 

Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth spoke with HFA about what it was like to find that your...
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Living with Glanzmann thrombasthenia 

Allison is in her mid-40s and was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences...
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