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Representing the NSW
bleeding disorders community


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Dr Michiel Coppens

Have your gene therapy questions answered

Dr Michiel Coppens is coming to Australia and we want your questions for a special 'Ask Me Anything' interview about...

World Haemophilia Day 2024

Bleeding disorders family

WFH Virtual Summit coming this June

The WFH has announced the launch of the WFH Virtual Summit: Connecting the Global Bleeding Disorders Community which will be...

Support Groups

Find local support groups in your area

Info for me...

Getting Older Hub

Youth walking

Youth – Factored In

Women with bleeding disorders

Find information for women and girls with bleeding disorders, including carrying the gene, haemophilia testing, VWD in females, self-advocacy and...
Bleeding Disorders Awareness Month
This October help us raise awareness for haemophilia, von Willebrand disease and other bleeding disorders.
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Personal stories
Jenny - acquired haemophilia

Acquired haemophilia – Jenny’s story

Jenny shares her story of how she discovered she had the acquired haemophilia and how it was able to be...
Claire speaking at the 21st Australian Conference on Haemophilia, VWD and Rare Bleeding Disorders

Hopes for the Future

Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia,...
Girl playing in garden. Image by Emma Bauso for Pexels.

Growing up with Glanzmann thrombasthenia 

Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth spoke with HFA about what it was like to find that your...
Woman looking at camera. Image by Adrienn for

Living with Glanzmann thrombasthenia 

Allison is in her mid-40s and was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences...
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