Representing the NSW
bleeding disorders community

Haemophilia Foundation New South Wales

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Women bleed too survey

What are the experiences of women and girls with bleeding disorders when they speak up for themselves in health care...

International Women’s Day 2026

8 March is International Women's Day. Help us balance the scales - let's raise awareness about bleeding disorders testing and...
Rare Disease Day

Rare Disease Day 2026

28 February is Rare Disease Day – a worldwide event to raise awareness and generate change for people with rare...

Support Groups

Find local support groups in your area

Apr
17
Jun
15
Jul
28

Looking for another foundation?

Click on the map to navigate to the site of each state's foundation.

Alternatively, click here to visit Haemophilia Foundation Australia.

Personal stories
Javonte and Simoni talk about growing up with a rare bleeding disorder

Simoni and Javonte – growing up with a rare bleeding disorder

Simoni and Javonte chat about growing up with VWD type 3 and severe haemophilia...

Carly’s story: Life with Glanzmann thrombasthenia

Carly is 22 and talks about living with Glanzmann thrombasthenia as a young person and the value of support, living...
Young woman with hat and suitcase - Freepik licence

Bel’s story: Navigating factor X deficiency

Bel talks about living with factor X deficiency, a rare bleeding disorder that affects the blood's ability to clot....

Telling daughters: Zev’s story

'Make it a family conversation'. Zev shares his advice for talking to daughters about haemophilia...
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