pauline – Haemophilia Foundation NSW

Men’s Health Week 2024

12 June 2024

International Men’s Health Week runs each year in the middle of June. It is an important opportunity to highlight the importance of men’s health, and to promote and support the health and wellbeing of men and boys in our communities.

Paul talks about his career

12 June 2024

Paul shares his experience working as an apprentice shipwright and boat builder, a FIFO WHS manager, and today supporting his brother in a business with over 60 employees and a growing client base.

HFA Gene Therapy Snapshot Survey

29 May 2024

Gene therapy, HFA & Foundation news, Research

HFA would like to understand what our community members want from their haemophilia treatments and your perspectives on gene therapy in particular.

Gene therapy interview with Dr Michiel Coppens now available

23 May 2024

Gene therapy, HFA & Foundation news

On 14 May 2024 we were fortunate to have Dr Michiel Coppens join us at the HFA office for an interview about gene therapy. Watch it now.

Have your gene therapy questions answered

24 April 2024

Dr Michiel Coppens is coming to Australia and we want your questions for a special 'Ask Me Anything' interview about gene therapy.

Acquired haemophilia – Jenny’s story

11 April 2024

Jenny shares her story of how she discovered she had acquired haemophilia and how it was able to be successfully treated with the support of her hospital and Haemophilia Treatment Centre.

Hopes for the Future

4 April 2024

Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia, VWD and rare bleeding disorders. This is a transcript of her presentation.

Growing up with Glanzmann thrombasthenia

28 February 2024

Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth spoke with HFA about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.

Living with Glanzmann thrombasthenia

28 February 2024

Allison is in her mid-40s and was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences and what she has learned from living with this very rare bleeding disorder.

Youth at the Conference

7 December 2023

Adam, Alan and Cassie talked to HFA about their experiences at the Melbourne Conference in August 2023. It was a great opportunity for young people with bleeding disorders to catch up with each other and hear the very latest information from the experts.

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