General – Haemophilia Foundation NSW

World Haemophilia Day 2026 Photos

5 May 2026

HFA & Foundation news, World Haemophilia Day

Across Australia landmarks and community members came together to recognise World Haemophilia Day

Life with an extra challenge – Cassie and Noah’s story

27 April 2026

Boys, Haemophilia, Parents & families, Personal stories

Cassie talks about raising a young family with an extra challenge - her son Noah has haemophilia B

TJ’s path to independence with VWD

27 April 2026

Sam, mother to 7-year-old TJ, shares her story about raising a young son with type 2A VWD

Michelle – Her journey to diagnosis

16 April 2026

Michelle first experienced bleeding symptoms, in the form of really flooding periods, at the age of 19. Nineteen years later - she got a diagnosis

VWD: Your voice matters – Sophie’s story

7 April 2026

Family Planning and Pregnancy, Personal stories, Von Willebrand disease, Women & girls

Sophie talks about being diagnosed with VWD in her 20s, pregnancy, and advocating for yourself and others

Steve on gene therapy for haemophilia

26 March 2026

Steve shares his experience having gene therapy for severe haemophilia A – and how it has changed his life

Women bleed too survey

5 March 2026

What are the experiences of women and girls with bleeding disorders when they speak up for themselves in health care settings? Survey closing 8 April 2026

International Women’s Day 2026

5 March 2026

8 March is International Women's Day. Help us balance the scales - let's raise awareness about bleeding disorders testing and diagnosis for women and girls

Rare Disease Day 2026

26 February 2026

28 February is Rare Disease Day – a worldwide event to raise awareness and generate change for people with rare diseases

Simoni and Javonte – growing up with a rare bleeding disorder

26 February 2026

Simoni and Javonte chat about growing up with VWD type 3 and severe haemophilia

Items tagged 'General'