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MyABDR – what’s coming up

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From the National Blood Authority and HFA MyABDR teams test

June 2018


Some people are coming back to using MyABDR after being on a clinical trial or starting to use MyABDR for the first time. What tips do regular MyABDR users have for new users? Michael, a MyABDR user from South Australia, had this to offer:
My favourite features are:
  • 4-digit pin access code for log in
  • Easy-to-track stock levels
  • Simple user interface for recording bleeds
My tips for new users or people coming back to it are:
  • Get into the habit of bringing your device with you when injecting so it’s right there and you don’t forget.
  • Put the app on your device’s front screen so it’s always in sight. Even subconsciously you will see it and this helps to remind you to use it. 
Why is there so much emphasis on using MyABDR to record your treatments and bleeds?
MyABDR was developed to support best practice clinical care and treatment of people with bleeding disorders.
It is a tool that can make it easier for both people with bleeding disorders and their Haemophilia Treatment Centre (HTC) to monitor and review treatment and care. It links directly to the Australian Bleeding Disorders Registry (ABDR), the system used nationally by HTCs for the clinical care of their patients. So when you record treatment and bleeds and maintain your treatment product inventory on MyABDR, you have a copy of your records and you can also share them with your treating team.
You can also login to the website version of MyABDR to look at graphs and other reports on your records of your treatments and bleeds – a great way to keep an eye on target joints, or talk to your HTC about how your treatment plan is going. This kind of monitoring is very important if you are considering a change to a different treatment or are having bleeds.
What can you do with MyABDR?
  • Record treatments and bleeds as they occur – and add notes or upload photos
  • Manage stock of treatment product (at your fingertips when you get the call asking what stock you need)
  • Share and discuss the information with your Haemophilia Treatment Centre
  • Have accurate records of your treatments and bleeds to look over at home and discuss at your review – rather than trying to remember what happened
  • Update your contact and personal details.
And there are other benefits!
Another benefit of MyABDR – your records can contribute to health and treatment statistics. This helps with treatment supply planning. This also helps with developing evidence for best practice and for new innovative treatments.
The treatments and bleeds that you record can become part of national statistics to show how a particular treatment works, including in individualised treatment regimens, and its impact on bleeding patterns. This is an effective way to understand and improve current treatments, and it is also a very valuable resource for national advocacy for future treatments.
The NBA will soon be implementing new security enhancements to improve the security of MyABDR system. The changes will include:
  • Extending the mandatory password character length from 9 to 10 in line with government security standards
  • The requirement for users to update their password regularly
More information will be emailed to MyABDR users ahead of the changes.
You will be pleased to hear that – with a lot of work behind the scenes to assess the current change requests – other improvements are also planned for MyABDR over the next 18 months.
The NBA has compiled a list of change requests and new functionality/enhancements and will commence a project to update the MyABDR system in latter half of 2018 and 2019.
Stay tuned for more details!
Don’t forget that the MyABDR Support team is always happy to help you with any problems, and can make a time to get back to you if that suits you.
They are available 24 hrs, 7 days a week.
T: 13 000 BLOOD / 13 000 25663
Date last reviewed: 20 June 2018

Important Note: This information was developed by Haemophilia Foundation Australia for education and information purposes only and does not replace advice from a treating health professional. Always see your health care provider for assessment and advice about your individual health before taking action or relying on published information. This information may be printed or photocopied for educational purposes.

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