FEMALE FACTORS: INFORMATION FOR YOUNG WOMEN WITH BLEEDING DISORDERS - OCTOBER 2018
Information about how bleeding disorders affect young women and teenage girls, with FAQs and personal stories. This resource includes explanations about heavy periods and other bleeding symptoms in females. It looks at haemophilia - and why bleeding patterns are different in females - von Willebrand disease (VWD), rare clotting factor deficiencies and inherited platelet disorders. It also covers other key questions for young women, including inheritance, diagnosis/testing, treatment and support, and tips for self-advocacy from other Australian women.
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|What is a bleeding disorder?
An overview of the types of bleeding disorders and symptoms in females.
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|Women's bleeding explained
What is 'normal' with periods and period pain?
Gynaecological problems for girls and women with bleeding disorders: heavy periods (heavy menstrual bleeding), premenstrual syndrome (PMS), dysmenorrhoea (period pain), mid-cycle pain (mittelschmerz), anaemia, bleeding after sex, endometriosis.
Includes diagrams explaining the menstrual cycle.
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Von Willebrand disease (VWD)
What is VWD? How common is it? How serious is it? Explains the different types of VWD, bleeding symptoms in females, genes and how you inherit VWD and can pass it on.
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|Haemophilia A and haemophilia B
Carrying the gene for haemophilia and having haemophilia if you are a girl or woman. Genes, inheritance, and how haemophilia is passed on down the generations, by both males and females. Bleeding symptoms in females - factor levels and severity, and why your bleeding pattern is different to your father, brother, mother or sister (lyonization and random X inactivation)!
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|Other bleeding disorders
Rare clotting factor deficiencies, inherited platelet function disorders, acquired haemophilia and VWD
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|Working with your Haemophilia Treatment Centre
Going to a Haemophilia Treatment Centre - the HTC team. Diagnosing a bleeding disorder in girls and women, including factor level and genetic testing for haemophilia, treatment plans and types of treatment.
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|What do I tell my other doctor or dentist?
Tips and personal strategies to manage your health care with health care services outside the Haemophilia Treatment Centre.
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|You are not alone
How you can connect to other girls and women with bleeding disorders and share experiences
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|Frequently Asked Questions (FAQs)
Answers to two common questions from young women with bleeding disorders:
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- 'I have a bleeding disorder and I'm really scared by the amount of blood I lose in a period. When should I go to the emergency department in my hospital? When would I need a blood transfusion?'
- 'I don't want to have a hysterectomy to control my bleeding issues because I might want to have children one day. What are my other options?'
How to contact Haemophilia Foundations and Haemophilia Treatment Centres (HTCs)
References and further reading, acknowledgements of those who contributed to this resource and the expert reviewers.
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Date last reviewed: 1 April 2020