Telling others

Telling others about bleeding disorders


TELLING OTHERS ABOUT BLEEDING DISORDERS: INFORMATION FOR WOMEN, GIRLS AND THEIR PARENTS - NOVEMBER 2018

Information to help with considering some of the issues about telling others (disclosure). It looks at some of the situations where disclosure might come up - with friends, family, new partners, school, work and health workers. It also talks about when you do and don't have to disclose and how to protect your rights and your privacy. Includes tips and personal stories. 

 

Download PDF 6.2MB

Read it as a magazine (ISSUU)

Sections


Tips for telling others 622KB
(And why tell? Or why wait to tell others?)

Telling friends and family 1.2MB

Telling daughters  1.1MB
(when and how to talk to your daughter about her bleeding disorder/carrying the gene)

Telling a new partner 832KB

Telling your partner's family  514KB

Telling work  915KB

Telling your daughter's school and carers  740KB
(Including childcare, babysitters, sports teams or coaches)

Telling health workers 336KB

What does the law say about disclosure?  841KB
(when are you required to disclose?)

More information  240KB
(Including sources and acknowledgments)

 

 


Date last reviewed: 5 December 2018